because it will cost about £20,000.
Jack told how his rare condition wipes out his eyesight but is then made worse because his brain tries to make sense of what it’s seeing.
He said: “It’s like a bad version of photoshop. I bump into things a lot.
“Because my eyesight is going quite fast I have to walk around and use touch to find light switches.
“I get frustrated but I’m trying to see the positives. And making jokes about what’s happening to me really helps.
“I’ve got a good family and fundraising team around me. They’re getting me through all this.”
Jack has the support of his dad and mum Pauline, 54, as well as older siblings Gemma, 29, and Lee, 25,
His parents have contacted the experts in Berlin and their plan is to fly over next week and start the treatment.
Their dream is that Jack’s sight is saved and he gets to see Christmas and his birthday later in December.
Lee said: “The treatment is our only hope. It’s that or nothing.
“If it saves Jack’s sight then that would really be the ultimate Christmas present. Nothing else would come close.”
Jack is desperate to draw attention to his plight to stop it happening to others.
He added: “Always pay for that extra eye test at the opticians. That made a big difference in my case and helped diagnose me quicker.
“People hesitate because it’s £10 but your health and eyesight are priceless.”
An NHS Grampian spokeswoman said: "We are sorry to hear Mr Binnie and his family are unhappy with the care they have received.
“The clinical team would welcome the opportunity to discuss this with them further and would encourage Mr Binnie to get in touch directly.
“All patients are encouraged to ask questions about their diagnosis and treatment, and we will always do our utmost to answer those questions in full."
Donations to Jack’s campaign can be made
machibet777.com