Parents of only child in Britain with rare form of leukaemia say NHS has condemned him to death by refusing £80k treatment

THE parents of a leukaemia-suffering child have accused the NHS of condemning their son to death after it refused to fund his treatment.

Daryl Allinson, 13, is the only child in the UK with a rare form of the disease.

And doctors say without a second bone marrow transplant the teenager may only have two months to live.

But NHS pen-pushers have decided against funding Daryl’s urgent treatment for the condition, which is called Atypical CML Monosomy 7 in Malignant Clone with Constitutional GATA2 Deficiency.

Dad Terry, from Frome, Somerset, said: "You'd think if he's the only kid in the country with this sort of leukaemia then they'd want to use him as a bit of a guinea pig.

“It was quite emotional over the weekend after we were told, it's absolutely ludicrous when they are playing with someone's life like this – how can they do that?"

Mum Sam added: “Our consultants have appealed, they can't believe it either. It's the pen-pushers at the top of the NHS that have said no to funding Daryl's second transplant. So they are saying my son has to die. But we will fight hard to find the money.”

Family and friends have rallied around and pledged to help raise the £70-80,000 private cost of the treatment via a crowd funding website.