Desperate mum’s plea to help her toddler who’s been covered in ‘hot and angry’ rash for a YEAR
A TODDLER has suffered in agony for over a year with a “hot and angry” rash that causes his entire body to swell, leaving his mum is desperate for answers.
Two-year-old Ashton Jai Rouse comes out in itchy red blotches that cover him from head to toe at least once a month.
It lasts for about a week and can make his tiny feet swell so much it becomes too painful to walk.
Doctors are baffled and say it could be a virus but mum, Gemma Lilley, says she’s tried every medicine and ointment on the market to no avail.
The mum-of-two from Hull explained how her son first developed the rash since he was 11-months old.
She said: “When he’s got the rash he can’t wear clothes, his body just feels too hot.
“His face goes swollen and blotchy and he struggles to open his eyes.
“His hands swell so much he can’t hold food, his feet swell so he can’t walk properly.
“When he’s got the rash I have to carry him about because walking is so painful.
“It comes out in red lumps and bumps, sometimes it looks his skin is bruising.
“He gets mad with just itching all the time. When he has it he doesn’t do anything.
“Sometimes the rash can remain for a fortnight – it’s really frustrating as no cream or medication we have tried has worked.”
Gemma says she has made countless trips to her GP, as well as taking him to A&E at Hull Royal Infirmary and appointments at Castle Hill Hospital.
After feeling “palmed off”, she made an official complaint to the Care Quality Commission.
She is telling her son’s story in the hope other parents will recognise the symptoms and know they are not alone.
She also hopes to raise awareness of the condition and get some answers to end her son’s suffering.
She added: “They’ve said it’s a viral infection but still nothing has worked.
“I’ve tried these different creams and medication but nothing’s really helped at all. We’ve been to the doctors so many times but still don’t know how to sort it.
“When he started on some stronger medication he found it hard to breathe.
“We want to find a way to fix it but are also being careful not to make it any worse.
“It gets to the point where he finds it hard walking. At the minute he can’t walk properly or open his eyes wide because everything is so sore.
The investigation into his treatment, which was launched by Hull and East Yorkshire Hospitals NHS Trust following the complaint to the CQC, has now concluded.
An NHS trust spokesman said “We are unable to provide specific comment on Ashton’s case for reasons of patient confidentiality.
“Following receipt of her complaint in February 2016, members of Trust staff have met with Miss Lilley, investigated her complaint, and subsequently provided a written response in the form of an investigation report.
“We are sorry to hear Miss Lilley remains dissatisfied with the outcome of the investigation and we would encourage her to contact our patient advice and liaison service to discuss this matter further.”
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