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A MUM is urging parents to trust their "instincts" after claiming her GP said her four-year-old daughter was “faking" symptoms a week before she was diagnosed with cancer.

Rebecca Herbert’s daughter Summer, now seven, was diagnosed with acute lymphoblastic leukaemia (ALL) in April 2022 after she was found lying on the floor in her bedroom, unable to walk or use her legs.

Summer Herbert, now seven, was diagnosed with ALL aged just 4 years old
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Summer Herbert, now seven, was diagnosed with ALL aged just 4 years oldCredit: PA
Her mum Rebecca claims she was told her daughter was 'faking her symptoms'
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Her mum Rebecca claims she was told her daughter was 'faking her symptoms'Credit: PA
Summer was poorly in the weeks before being found on her bedroom floor unable to move
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Summer was poorly in the weeks before being found on her bedroom floor unable to moveCredit: PA

Summer, from Hampshire, had been “constantly poorly” and bruising easily in the weeks prior.

But when Rebecca, 33, visited her GP, she claims the doctor said Summer was “faking it” and told her to “go home and dose her up on Calpol”.

Lawyers acting on behalf of the GP said they were sorry to hear Rebecca “felt her daughter’s symptoms were not treated seriously”, and claimed they told her to take Summer for an X-ray that evening at the closest A&E department.

Rebecca said when she reached the nearest medical centre, she was told Summer was not booked in for an X-ray, so instead decided to take Summer to Royal Hampshire County Hospital, Winchester, that same evening.

Read more on leukaemia

She had blood tests and one week later, after being referred to Southampton General Hospital, it was confirmed that four-year-old Summer had leukaemia.

Summer had more than two years of chemotherapy, meaning she lost all her hair and missed school, swimming lessons and seeing friends.

But after finishing her treatment in June, she had a party to celebrate and was treated like “a proper princess”.

Reflecting on Summer’s diagnosis - which she said was very nearly missed - Rebecca wants to urge other parents to trust their gut instincts.

She said: “When I went to the doctors with her, they basically said that she was faking it.

“They literally said, from their mouth, ‘She’s faking it’. I said: ‘Why would she fake it? It’s half-term.’ I’d understand if it was my son and he didn’t want to go to school, but this wasn’t the case.

Boy, 4, starts school with twin sister after battling leukaemia and stroke

“They said, ‘No, no, just go home and dose her up on Calpol’ … I thought, ‘No, this isn’t right’.”

She added: “Just always go for your mother instincts. You know when something’s wrong with your kids … and even if you’re not sure, go and get checked.”

Rebecca, a former care worker, described her daughter Summer as a “fireball” – she said she was full of energy and always smiling.

In early 2022, Rebecca noticed that Summer was bruising more than normal and she was “constantly poorly” – but assuming she just had “the normal common cold”, she “didn’t think anything of it”.

I went upstairs and she was just lying there and I thought, ‘Something’s wrong’

Rebecca Herbert

When Summer slipped on her skateboard and “smashed her head open”, requiring stitches, Rebecca said she then noticed the wound was not healing properly, which was “weird”.

But when Summer’s brother discovered her lying on the floor in April 2022 during the Easter holidays, unable to move, Rebecca knew it was “something serious”.

“We went to a museum and she looked very pale, but I just thought, because she’s had a long day, she’s just tired,” Rebecca explained.

“But then the next day, she was upstairs in her bedroom – I just went down for a coffee – and her brother was screaming, ‘Summer can’t get up from the floor!’

“So I went upstairs and she was just lying there and I thought, ‘Something’s wrong’.”

Rebecca said her gut instinct took over and and she knew something was seriously wrong with Summer
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Rebecca said her gut instinct took over and and she knew something was seriously wrong with SummerCredit: PA
Summer underwent chemo to treat the cancer and was forced to miss school and playdates
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Summer underwent chemo to treat the cancer and was forced to miss school and playdatesCredit: PA
Summer in hospital while receiving treatment
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Summer in hospital while receiving treatmentCredit: PA
Summer had a smile on her face throughout the ordeal
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Summer had a smile on her face throughout the ordealCredit: PA

Rebecca said Summer had a temperature of 39.9C and she called her GP to book an emergency appointment, which she secured for later that afternoon.

Rebecca, who lives with her husband Martin, 36, an engineer, said she was trying not to “panic” – but when she saw her GP, she claims they said Summer was “faking” her symptoms and she should just “dose up” on Calpol.

According to Rebecca, the GP did also send her for an X-ray, but when they got to the minor injuries department that evening she was told Summer was not booked in so there was not one available.

With her gut telling her it was more serious, Rebecca said she drove to Royal Hampshire County Hospital that evening – and while waiting for further tests, she started looking up Summer’s symptoms.

When I tell you this child bossed it, from start to finish, I’m not kidding. Any picture you see, she has a smile on her face

Rebecca Herbert

According to Cancer Research UK, symptoms of childhood ALL can include breathlessness, looking pale, picking up infections easily and bruising or bleeding easily – and with Summer having many of these, Rebecca feared the worst.

“I pre-warned myself and when I told my husband, he said, ‘No, no, it’s probably something else, she’s probably anaemic’,” Rebecca said.

“But then a week later, after going to Southampton General Hospital, we found out that she had leukaemia.”

According to the charity , which supports children and young people (0-25) with cancer and their families, one in every 450 children under 15 develops a cancer in the UK.

'Emotional' moments

One of Rebecca’s first questions after hearing the diagnosis was, “is she going to lose her hair?”, but she said her mind just went “blank” after this.

Summer then started the first of several rounds of chemotherapy and, within 10 days, Rebecca said her hair was “shredding”.

Despite side effects of hair loss and fatigue, and missing school, parties, and seeing her friends, Rebecca said Summer continued smiling and never complained during the following two years of treatment.

Rebecca said: “Us girls, we love our hair, so I would be distraught if I lost my hair.

“I even said to Summer, ‘If you want, I’ll cut my hair off too’, but she said, ‘No, mummy, you’re old and it will take forever to grow back, so I can just get a wig’.

“When I tell you this child bossed it, from start to finish, I’m not kidding.

“Any picture you see, she has a smile on her face.”

Summer with her father Martin in hospital
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Summer with her father Martin in hospitalCredit: PA
Summer wearing a wig
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Summer wearing a wigCredit: PA
The tot beaming at her party to celebrate the end of her chemotherapy
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The tot beaming at her party to celebrate the end of her chemotherapyCredit: PA
Summer’s celebration cake to mark the end of her chemo
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Summer’s celebration cake to mark the end of her chemoCredit: PA

Due to Summer’s chemotherapy treatment, she is “very behind” on her schoolwork, but she is gradually catching up.

At her party to celebrate her reaching remission, there was a “massive cake” and everyone wore orange - leukaemia is represented by this colour.

“My husband’s brother made a bell, so she rang the bell in front of everyone, it was very emotional, and there was a big teddy next to it,” Rebecca said.

“We bought her a brand-new dress and a hairdresser came to our house. She was treated like a proper princess that day – she had her makeup done, all her nails done.”

Get strange symptoms checked

Rebecca said the family is “back to normality” now, which feels “scary”, but Summer is regularly going for check-ups and blood tests to ensure the cancer does not return.

She wants to encourage other parents to read up on childhood leukaemia, as many of Summer’s symptoms matched medical information provided online, and to get any unusual symptoms checked.

Speaking about Summer now, she said: “I am that mum that will say, ‘I’m proud of my children’.

“She’s always wanting to learn and she’s smashing life at the moment.”

’s specialist social workers are available from the moment of diagnosis to help young people and families, like Summer’s, get the right support at the right time.

The symptoms of childhood acute lymphoblastic leukaemia

Acute lymphoblastic leukaemia (ALL) is a type of blood cancer.

It starts from white blood cells called lymphocytes in the bone marrow.

Anyone can get it, but it is most common in younger people, especially children aged four and under.

Symptoms often mimic other conditions, but kids might experience:

  • Feeling weak or tired
  • Flu-like symptoms
  • A high temperature (fever)
  • Picking up or not being able to shake off infections, such as coughs and colds
  • Bruising and bleeding easily
  • Weight loss
  • Swollen lymph nodes
  • Bone or joint pain
  • Breathlessness
  • Feeling full
  • Looking pale or washed out

Some patients will also get a rash that looks like tiny red, purple or brown dots that don't turn white when pressed.

Almost 90 per cent of children under 15 with ALL will survive for five years or more after being diagnosed.

Source:

A statement from Summer’s GP, shared through lawyers acting on their behalf, stated: “[The GP] were sorry to hear that [Rebecca] felt her daughter’s symptoms were not treated seriously and would like to reassure her that this is not the case.

“[The GP] was very concerned about [Rebecca’s] daughter, who presented with pain in her lower right leg, and who he recorded was unable to weight bear.

“[They] recorded that she needed an X-ray to exclude the possibility of a greenstick fracture and asked [Rebecca] to take her to the nearest A&E department for an X-ray that evening.

“[Rebecca] and her daughter in fact attended the local minor injuries unit, who recorded that they had been sent by their GP for an X-ray.

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“[The GP] was also conscious that there might be a malignant cause for the leg pain and recorded a plan to consider the need for a paediatric review if the X-ray was normal and if [Rebecca’s] daughter was still unable to weight bear the next day.

“[The GP was] pleased to learn that the various NHS departments worked well together to diagnose and treat [Rebecca’s]daughter and wish her and her family well.”

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