Jump directly to the content

A WOMAN who lost 6st after pooing 30 times a day initially put her symptoms down to eating too much pizza.

Matilda Crome, 24, was diagnosed with the bowel condition Crohn's disease - which causes the digestive system to become inflamed.

a woman is laying in a hospital bed number 28
20
Matilda Crome was ill for years before being diagnosed with Crohn's diseaseCredit: SWNS
a woman is sitting on a rock wearing a blue shirt that says " i 'm a girl "
20
The now-24-year-old started suffering from symptoms aged 14Credit: SWNS

Her symptoms, which included a "gassy stomach", began aged 14 while on holiday in Italy, so she assumed they were caused by over-indulging in the local cuisine.

But back home, her issues continued - though doctors dismissed them as period pains or irritable bowel syndrome (IBS).

When Matilda found blood in her poo, she feared it was something more serious.

Her condition became so severe that she took her GCSE exams in her bed at her home in Manchester, with an invigilator sitting next to her.

READ MORE ON CROHN'S

At her worst, Matilda lost a staggering 6st and nearly died after developing sepsis - a life-threatening reaction to an infection.

But new medication meant that in October 2023, she was healthy enough to buy a van and go on a solo climbing trip.

She travelled to Spain and Morocco, returning home in February this year.

Matilda then underwent surgery to remove her colon and reattach her small bowel to her rectum, and she now hopes to go travelling again.

Matilda, who cannot work due to her condition, said: "I was going to the toilet up to 30 times a day.

"When I saw blood in my poo, I thought I had cancer and was going to die.

Man goes through menopause after DIY poo transplants from mum 'cured' his Crohn's

"I was passed from pillar to post and told it was all in my head.

"When I finally got my diagnosis, I cried with pure relief.

"During my recovery, I found climbing and became quickly attached.

"I can safely say climbing was a massive part of what helped me - it made me feel again."

What is Crohn's disease?

CROHN's disease is a lifelong condition where parts of the digestive system become inflamed.

It is a type of inflammatory bowel disease (IBD) which, along with ulcerative colitis, affects almost half a million people in the UK.

Symptoms usually start in childhood, but the disease affects people of all ages. These include:

  • Diarrhoea
  • Stomach aches and cramps
  • Blood in your poo
  • Tiredness (fatigue)
  • Weight loss

There is no cure, but treatment can help reduce or control symptoms.

Some people take medication to lessen inflammation in the digestive system, while others might have surgery to remove a small area.

The exact cause is unknown, but genes, problems with your immune system, smoking, stomach bugs and gut bacteria imbalances are believed to play a part.

Source: NHS

Matilda started going to the toilet more frequently while she was on holiday with her parents in Rome aged 14.

They assumed she might have a gluten intolerance from eating pizza, but her symptoms continued to get worse at home.

She then noticed blood in her stool and two years later, she was diagnosed with Crohn's disease.

Along with colitis, another type of inflammatory bowel disease (IBD), the condition, which can cause abdominal pain, diarrhoea, weight loss and fatigue, affects one in 123 people in the UK.

a woman stands next to a woman in a hospital bed with the number 5 on the wall behind them
20
Matilda in hospital with her nana JaneCredit: SWNS
a woman sits on a rock with her eyes closed
20
In October 2023, she was healthy enough to buy a van and go on a solo climbing tripCredit: SWNS
three women are posing for a picture with one wearing a north face jacket
20
Matilda with her sister Rose and mum EmmaCredit: SWNS
a woman in a hospital holding a measuring cup in front of a way out sign
20
In 2020, she was admitted to hospital where she 'nearly died'Credit: SWNS

Matilda battled severe symptoms while sitting her GCSE exams in 2016, aged 16.

She said: "Part of me was happy to know what was causing it, although I knew I faced a life ahead of me with a chronic illness.

"I was determined to sit my GCSEs, despite how poorly I was feeling.

"We had a note on the front door which said 'exam in progress', which was quite funny."

My parents were called urgently to come say 'goodbye' and prepare for the worst

Matilda Crome

Despite being put on various medications, including steroids and monthly injections, Matilda said she was in "constant pain".

She became housebound and couldn't go anywhere unless she knew there was a toilet nearby.

Her weight plummeted to just over 5st and she was making frequent trips to A&E.

In 2020, when she was 20, she was admitted to Manchester Royal Infirmary hospital and "nearly died".

"I truly owe my life to my IBD doctor, who fought for a bed in hospital for me," Matilda, who has shared her journey on , said.

"Without her, I believe I would’ve died.

"I remember one night I was sure my body was going to give up and I wasn’t going to wake up.

"My parents tell me now how lucky I was.

"They were called urgently to come say 'goodbye' and prepare for the worst."

'SPARK' FINALLY STARTS TO RETURN

Luckily, Matilda was prescribed strong antibiotics, and her health began to improve.

After a couple of years, she got back to a healthy weight and was able to start "living life" again.

"I was finally starting to see my spark come back and the reasons for living and it felt amazing," she added.

"I bought a van and went on a solo climbing trip to Morocco and Spain, something my Crohn’s had stopped me from doing previously."

However, in March 2024, she received an email from the hospital and doctors revealed her large bowel was still inflamed.

She underwent an operation to remove her colon called a colostomy - but luckily, didn't need a colostomy bag fitted.

Now, four months post-op, Matilda’s recovery has been up and down but she's hopeful for the future.

"I was shocked I needed surgery, because it was the best I’d felt in years," she said.

"I try to run with the good days, because I know how bad the bad days can be.

READ MORE SUN STORIES

"You can still live your life with a chronic condition, it might just alter the path your life takes.

"I’ve got a long road of recovery ahead, but if this means I can live a semi-normal life and travel the world, then it will be worth it."

a woman in a white dress and brown boots stands on a gravel path
20
Matilda says she runs to enjoy the good days because she knows how bad the bad days can beCredit: SWNS
a woman in a bikini stands in front of a greenhouse
20
While travelling, Matilda visited Spain and MoroccoCredit: SWNS
a woman in a helmet climbs a rocky cliff overlooking a lake
20
She quickly found a love for climbing during her recoveryCredit: SWNS
a woman in a blue jacket stands in front of a mountain range
20
Crohn's and colitis affect one in 123 people in the UKCredit: SWNS
two girls in a hospital bed with a sign that says matilda creme
20
Matilda with her sister RoseCredit: SWNS
a woman wearing sunglasses and a backpack walks down a path in the mountains
20
She did her GCSE exams from home due to being so unwellCredit: SWNS
a woman with red hair is walking down a dirt road
20
Doctors initially dismissed her symptoms as period paidCredit: SWNS
a woman in a wheelchair is wrapped in a pink blanket
20
Matilda also assumed her symptoms weren't anything to worry about - until she found blood in her pooCredit: SWNS
a woman taking a picture of herself in a hospital room
20
Matilda had surgery to remove her colon and reattach her small bowel to her rectumCredit: SWNS
a woman in a hospital gown giving a thumbs up with the caption colonoscopy time
20
She hopes to go travelling again in the near futureCredit: SWNS
a woman in a green jacket stands in front of a waterfall
20
At one stage, her parents were called to 'prepare for the worst'Credit: SWNS
two women sit on top of a white van with a license plate that says gj69 ydv
20
As a teenager, she couldn't leave the house unless she knew there was a toilet nearbyCredit: SWNS
a group of people holding a purple sign that says crohn 's & colitis uk
20
Dad Keith, Matilda, her sister Rose, mum Emma and step dad IanCredit: SWNS
a woman in a wheelchair sits next to another woman
20
The siblings while Matilda was recoveringCredit: SWNS
Topics