I lost my eye to cancer as a baby – now I have a glow in the dark eyeball
TAKING pictures of your little one is a key part of them growing up.
It charts special moments, but for one family, it revealed a terrifying illness in their daughter.
He asked her parents for pictures of her and saw a sure sign that something was amiss.
Her right eye appeared to be emitting a glow in the image - a key sign of cancer or eye disease.
In October 1991, Rachel, now 32, was diagnosed with retinoblastoma.
Read more on eye cancer
This is a cancer that is found in the retina and most commonly affects young children.
Doctors explained there was no chance of saving the eye and it had to be removed urgently to prevent the illness spreading.
Four days later, the youngster had the eyeball removed and luckily, she says she doesn't remember much of her journey.
Now Rachel is raising awareness of the condition and has even grown the confidence to experiment with different prosthetics.
She was fitted with her first prosthetic when she was 20-months-old and recalls not being massively affected by having just one eye and always wore a prosthetic.
However children nicknamed her “Cyclopes” as a result.
But it wasn’t until her mid-20s that she suffered any self-confidence issues, after having a surgery designed to replace the implant holding her prosthetic in place.
Rachel, who lives in Portland, Oregon, US said after surgery and the healing process, her eye lost most of its ability to blink.
Later, they stop growing and develop into mature retinal cells that can detect light (the role of the retina).
But sometimes, they do not stop growing or mature.
Instead, they grow out of control and develop into a cancerous tumour called retinoblastoma.
If the tumour is not treated, the cells continue to grow and the cancer fills most of the eyeball.
Most retinoblastomas are found early and successfully treated before they spread outside the eyeball.
If they do spread, they can go to anywhere in the body including the brain, bones and lymph nodes Open a glossary item. They can be difficult to treat once they have spread
“I really wanted a way to show people that I’m happy with who I am and I am open to questions and didn’t want to hide the fact that I wore a prosthetic.
“I love gold and had wanted a gold prosthetic for a while, and when I brought it up to Christina, she was not only supportive but excited about the project.
“Since then, she has made six or more fun eyes for me including glow in the dark, holographic and gold-leaf eyes.”
Rachel shows off her funky prosthetics on TikTok with her 368,000 followers.
Her most popular clips have racked up more than 11 million views, and Rachel says she is committed to helping end the stigma of visible differences.
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She added: “I love to make people laugh on TikTok and shed some light on what life is like having a prosthetic through humour.
“Being able to laugh about the things that make us different is such a vital tool. Be exactly who you are 100 per cent of the time and you’ll have nothing to hide.”
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